my colitis journey

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01 January 2017

May 2, 2017August 3, 2017Leave a comment

Happy New Year!

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20 December 2016

May 2, 2017August 3, 2017Leave a comment

One day at a time...

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15 December 2016

April 19, 2017August 3, 2017Leave a comment

There's no place like home.

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02 December 2016

February 22, 2017August 3, 20171 Comment

Stomas. Stitches. & feeding tubes.

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30 November 2016 – Part Two

February 13, 2017August 3, 2017Leave a comment

You're alive!

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30 November 2016 – Part One

February 2, 2017August 3, 20171 Comment

Will I wake up?

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29 November 2016

January 30, 2017August 3, 20173 Comments

If you don't have surgery tomorrow, you'll be dead in three days.

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WALK IT 2018

In June, I'll be walking 10km around London to raise money for Crohn's & Colitis UK. If you'd like to sponsor me and help me reach my target of £200 then click the link below - thank you!

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consultation

psychologistJune 6th, 2018

walk it

londonJune 9th, 2018

han’s birthday

surpriseJune 14th, 2018

holiday

sunshineJune 27th, 2018

check up

stomaSeptember 5th, 2018

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Three years ago today, I was being wheeled into surgery. My stoma was only meant to be a temporary measure, “3 - 6 months at most” is what I was originally told. But that was 1,095 days ago and three years on Sally is still a part of my life and will continue to be for the next five years or so. I don’t think I’ll ever like her, but I’m grateful she’s given me the gift of life. So thank you Sal, and happy birthday 3️⃣🎉💩

The other day was 3 years since I was diagnosed with Ulcerative Colitis. 3 years since I was told I’ve got this incurable autoimmune disease and I would need surgery “at some point”. Do you ever really become okay with that? Do you ever really accept that your body has decide to malfunction and attack itself and that there’s no cure for it? I don’t know. All I know is I’m still not okay with it. So a friend took me out for dinner to distract myself from thinking about it too much. It was exactly what I needed and the food was lush. Thank you Moose 🖤 #datenight #ulcerativecolitis #anniversary #threeyears #ibd #inflammatoryboweldisease #lifetakesguts

Sorry I’ve been quiet on here for a while. My mental health has been suffering a bit recently, it’s November and 3 years since diagnosis and survey so my brain is a bit of a mess. And logging in the other week I had some unpleasant DMs which didn’t help either. But, I thought I’d share this picture with you. Not directly related to anything belly but indirectly. As many of you know, I suffer from bad joint pain and have been seeing a rheumatologist for a year now. I was told I needed “proper supporting” shoes for work so I got myself some black Timberlands and they helped stop my ankles from rolling inwards. When shopping the other day, there were so many sparkly heels for the xmas season available but I came home with a pair of these. Debbie (consultant) would be proud of me for choosing these over the sparkly ones 😅 Hope you all have a nice day, it’s Friday so enjoy the weekend! Xx

This is all too relatable to me and that’s slightly scary to admit. It’s no secret that I’ve been having therapy for over 18 months now because of struggles with past experiences and my mental health. But more so recently I’ve found social media has had a negative impact on me, which is why I hardly use my colitis instagram now. It got to the point where I needed to take a break and distance myself from the online world. I’ve had messages from strangers telling me I’m ugly. Telling me that no one will ever love me. Telling me I’m disgusting. I’ve been called ungrateful for not liking my bag. I’ve also been told I should have died on the operating table. Not many people know I got told that, because even typing this is bringing tears to my eyes. Again, not many people know this but before my surgery, I didn’t want to make it through and part of me didn’t want to wake up on the other side and that’s still so hard for me to think about even though my surgery was nearly three years ago. Abuse is never okay. Whether it’s face to face or online - it’s still abuse. I don’t understand how anyone can ever say anything so disgusting and vile to someone implying they should kill themselves. I’m lucky to not be in those dark places anymore and I’ve got an amazing support network around me for when I do have my down days and my blips, because they do happen. Three years on, I’m still having therapy and finding it hard to accept my new body and life. Think before you say and think before you type. You never know what the other person is going through. Even if they‘re smiling on the outside, it’s not necessarily how they’re feeling on the inside. @jesynelson you are an inspiration and I don’t think you’ll realise just how many people you’ll help by making this documentary. 🖤 #jesynelsonoddoneout #inspiration #trolling #onlinebullying #crohnsandcolitisuk #ulcerativecolitis #inflammatoryboweldisease #ibd #stoma #ileostomy

Sun’s out ☀️ Bag’s out 💩 #ulcerativecolitis #ibd #ileostomy #stoma #baglife #shithappens

There are definitely worse places I could be doing a bag change 💩 #holiday #vacay #abouttime #tunisia #hammamet #stomaontour #bagchange #ibd #travel #ulcerativecolitis #ileostomy #shithappens #lifegoeson #nocolonstillrollin

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